i want to do a very tiny bit for this world and...

i want to do a very tiny bit for this world and i need ur help bro..

Score: 9 Votes: 9
Score: 9 Votes: 9
Score: 9 Votes: 9
Score: 9 Votes: 9
Score: 9 Votes: 9
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recently i lost someone very close to me due to a disease called ILD that’s intestitial lung disease..its a form of lung diesase which is progressive..
when my dear one was alive i use to do a lot of research on the illness and all necessary things in all aspects but i use to hardly get much info about it and asking doctors was not possible due to time limitations consultation
in last 2 years i did extensive research on this illness and all that goes around it and have a lot of experience which i got about this fatal disease… and i want to grant this knowledge to those unknown people whose dear ones are in that stage wher my dear one was sometime ago..
so request u to tell me where do i post my entire journey so it can be googled up on top results by those who search it.. i also want to share my email contact incase someone wants to know some more details which i may have not mentioned in my writeup

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Deal Subedar
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Vu for more visibility..

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@eskimo First create a blog with all the information you want to share. Then search the same on Quora. Look for questions that someone had asked earlier and try to answer the query with reference to your blog.

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@ramsharma2099 wrote:

@eskimo First create a blog with all the information you want to share. Then search the same on Quora. Look for questions that someone had asked earlier and try to answer the query with reference to your blog.

okies tnxx

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Deal Cadet
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Sorry to hear abt it
I understand u wanna help ppl like this ,but u r not able to see the full truth

Such progressive diseases does not kill ppl in a day,it takes years . I the mean time you should make ppl believe that they can live a good happy life
With most of such diseases ,ppl cn live a gud lyf

Your idea of making ppl aware of the disease ,cn be really dangerous, u cn make them feel disabled

What u need to do is to help them overcome their daily prob
If u maka person believe thst he cant fo things,trust me his/her life is finished

So , u need to give them hope and strength and live woth them rather than telling them how sick they are ,and how will they die in end stage . U need to understand that ur actions can panic them and there family members

U cn do more harm than good, u can change their mindset and they might live rest of life more misery
Also try n understand ppl with such disease dnt make it public

How would u feel if every thirdd person tell u that u r sick or ask how is your health

Trust me buddy refrain from this . U might have unknowingly caused prob for ur frnd

PS. Give ppl hope , giv them strength

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Deal Subedar
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The term is actually interstitial lung diseases. It is not a single disease but refers to a group of diseases that affect the interstitium. They are also sometimes called DPLD (diffused parenchymal lung disease). It may occur when an injury to the lungs triggers an abnormal healing response. Ordinarily, the body generates just the right amount of tissue to repair damage. But in interstitial lung disease, the repair process goes awry and the tissue around the air sacs (alveoli) becomes scarred and thickened. This makes it more difficult for oxygen to pass into the bloodstream. One common cause is post-recovery of Lungs TB.

ILD along with COPD (Chronic obstructive pulmonary disease) account for the majority of lungs patients.

There is practically no cure for either ILD or COPD. Only drugs and environmental conditioning can help reduce the lungs degradation and prolong the lifespan. Also, it is essential to keep the mental strength of the patient and their fighting spirit high, as that is what keeps them going. Giving oxygen is often counter-productive as it enhances the progression of the disease. The only viable option is non-invasive ventilation through Bi-PAP but that is also very difficult to administer continuously in a home environment.

My mother suffered Lungs TB at the age of 16. Her secondary conditions were diagnosed at the age of 41. She still continued to live till the age of 73 just by virtue of her mental strength and fighting spirit, with whatever little help the drugs could offer her. Except for the last 6 weeks of her life, she remained mobile. We knew her condition for 30 years, saw the progression of the disease and hoped that one day there would be some real cure. She refused hospital ventilation and also did not accept Bi-PAP till the last few months, as she preferred to have her consciousness and mobility rather than been bed-ridden for long. for her the quality of life was more important than longevity.

But when I look back, I think that her choice was perhaps the best way.

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Create a free blog with blogger.com….
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@eskimo i sense something fishy. It should not matter whether what you wrote should be ranked on top results of google. After all readers can browse till the end if they dont get what they are looking for. For this aspect, you do need to understand your readers and techniqjes like seo, pr, keyword research and the most important thing is marketing your contents.
I know what you are looking for biggrin
Before that, y dont u start sharing ur content over here with proper keywords. DnD is one of the good freinds of google in terms of ranking and indexing. Follow the foot steps of @Alpha.Barood
Btw, what is the name of that lung disease?

Draw
Deal Colonel
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@panchabhut wrote:

The term is actually interstitial lung diseases. It is not a single disease but refers to a group of diseases that affect the interstitium. They are also sometimes called DPLD (diffused parenchymal lung disease). It may occur when an injury to the lungs triggers an abnormal healing response. Ordinarily, the body generates just the right amount of tissue to repair damage. But in interstitial lung disease, the repair process goes awry and the tissue around the air sacs (alveoli) becomes scarred and thickened. This makes it more difficult for oxygen to pass into the bloodstream. One common cause is post-recovery of Lungs TB.

ILD along with COPD (Chronic obstructive pulmonary disease) account for the majority of lungs patients.

There is practically no cure for either ILD or COPD. Only drugs and environmental conditioning can help reduce the lungs degradation and prolong the lifespan. Also, it is essential to keep the mental strength of the patient and their fighting spirit high, as that is what keeps them going. Giving oxygen is often counter-productive as it enhances the progression of the disease. The only viable option is non-invasive ventilation through Bi-PAP but that is also very difficult to administer continuously in a home environment.

My mother suffered Lungs TB at the age of 16. Her secondary conditions were diagnosed at the age of 41. She still continued to live till the age of 73 just by virtue of her mental strength and fighting spirit, with whatever little help the drugs could offer her. Except for the last 6 weeks of her life, she remained mobile. We knew her condition for 30 years, saw the progression of the disease and hoped that one day there would be some real cure. She refused hospital ventilation and also did not accept Bi-PAP till the last few months, as she preferred to have her consciousness and mobility rather than been bed-ridden for long. for her the quality of life was more important than longevity.

But when I look back, I think that her choice was perhaps the best way.


Ati Uttam

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@asoka wrote:

@eskimo i sense something fishy. It should not matter whether what you wrote should be ranked on top results of google. After all readers can browse till the end if they dont get what they are looking for. For this aspect, you do need to understand your readers and techniqjes like seo, pr, keyword research and the most important thing is marketing your contents.
I know what you are looking for biggrin
Before that, y dont u start sharing ur content over here with proper keywords. DnD is one of the good freinds of google in terms of ranking and indexing. Follow the foot steps of @Alpha.Barood
Btw, what is the name of that lung disease?

ILD

Missing
Deal Cadet
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@lostdrms wrote:

Sorry to hear abt it
I understand u wanna help ppl like this ,but u r not able to see the full truth

Such progressive diseases does not kill ppl in a day,it takes years . I the mean time you should make ppl believe that they can live a good happy life
With most of such diseases ,ppl cn live a gud lyf

Your idea of making ppl aware of the disease ,cn be really dangerous, u cn make them feel disabled

What u need to do is to help them overcome their daily prob
If u maka person believe thst he cant fo things,trust me his/her life is finished

So , u need to give them hope and strength and live woth them rather than telling them how sick they are ,and how will they die in end stage . U need to understand that ur actions can panic them and there family members

U cn do more harm than good, u can change their mindset and they might live rest of life more misery
Also try n understand ppl with such disease dnt make it public

How would u feel if every thirdd person tell u that u r sick or ask how is your health

Trust me buddy refrain from this . U might have unknowingly caused prob for ur frnd


PS. Give ppl hope , giv them strength

no i would have never made a negative writeup. my main aim was to make awarewess of which doctor to go for.. wats the current advancements of medicines as nee medicines are launched. which oxygen mashine to buy and not to invest in cylinder based oxygen.. hoe much liter of oxygen to b administered at home. some maschines come with 5l per min some lit per min… there are lots and lots of small things which i only understood by experience and my motive is to not spread panic

Missing
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@panchabhut wrote:

The term is actually interstitial lung diseases. It is not a single disease but refers to a group of diseases that affect the interstitium. They are also sometimes called DPLD (diffused parenchymal lung disease). It may occur when an injury to the lungs triggers an abnormal healing response. Ordinarily, the body generates just the right amount of tissue to repair damage. But in interstitial lung disease, the repair process goes awry and the tissue around the air sacs (alveoli) becomes scarred and thickened. This makes it more difficult for oxygen to pass into the bloodstream. One common cause is post-recovery of Lungs TB.

ILD along with COPD (Chronic obstructive pulmonary disease) account for the majority of lungs patients.

There is practically no cure for either ILD or COPD. Only drugs and environmental conditioning can help reduce the lungs degradation and prolong the lifespan. Also, it is essential to keep the mental strength of the patient and their fighting spirit high, as that is what keeps them going. Giving oxygen is often counter-productive as it enhances the progression of the disease. The only viable option is non-invasive ventilation through Bi-PAP but that is also very difficult to administer continuously in a home environment.

My mother suffered Lungs TB at the age of 16. Her secondary conditions were diagnosed at the age of 41. She still continued to live till the age of 73 just by virtue of her mental strength and fighting spirit, with whatever little help the drugs could offer her. Except for the last 6 weeks of her life, she remained mobile. We knew her condition for 30 years, saw the progression of the disease and hoped that one day there would be some real cure. She refused hospital ventilation and also did not accept Bi-PAP till the last few months, as she preferred to have her consciousness and mobility rather than been bed-ridden for long. for her the quality of life was more important than longevity.

But when I look back, I think that her choice was perhaps the best way.

giving oxygen is counter productive and can enhance the disease eek how is this ???

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also lung transplantation research i did which i would like to share in that content as in how practical it is and how to go about it etc..

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@eskimo wrote:

giving oxygen is counter productive and can enhance the disease eek how is this ???


Administering continuous oxygen rich air results in damaged aviolies to work faster and in the process, the unaffected aviolies also start getting damaged faster. the only way is to stimulate normal breathing process, where external aid is given to the lungs to breathe out the CO2 in cyclic fashion.

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@panchabhut wrote:


@eskimo wrote:

giving oxygen is counter productive and can enhance the disease eek how is this ???


Administering continuous oxygen rich air results in damaged aviolies to work faster and in the process, the unaffected aviolies also start getting damaged faster. the only way is to stimulate normal breathing process, where external aid is given to the lungs to breathe out the CO2 in cyclic fashion.

in my case the oxygen was falling to 50spo2 without oxygen support…
and ABG test reading was 34 SPO2
O2 was almost 24 hours for 3 months before death
total bed ridden..and extremely weak

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@eskimo
That happens with all ILD /COPD patients in their final stages. External oxygen becomes necessary but continuous oxygen actually increases the CO2 levels and SPO2 levels come down. So patient needs to be also supported by Bi-PAP machine (with oxygen) at least for some part of the day to reduce the CO2 build up.

Missing